In the prospect of improved disease management and future clinical trials in Frontotemporal Dementia, it is desirable to share common diagnostic procedures. To this aim, the Italian FTD Network, under the aegis of the Italian Neurological Society for Dementia, has been established. Currently, 85 Italian Centers involved in dementia care are part of the network. Each Center completed a questionnaire on the local clinical procedures, focused on (1) clinical assessment, (2) use of neuroimaging and genetics; (3) support for patients and caregivers; (4) an opinion about the prevalence of FTD. The analyses of the results documented a comprehensive clinical and instrumental approach to FTD patients and their caregivers in Italy, with about 1,000 newly diagnosed cases per year and 2,500 patients currently followed by the participating Centers. In analogy to other European FTD consortia, future aims will be devoted to collect data on epidemiology of FTD and its subtypes and to provide harmonization of procedures among Centers.

Italian Frontotemporal Dementia Network (FTD Group-SINDEM): sharing clinical and diagnostic procedures in Frontotemporal Dementia in Italy

RAINERO, Innocenzo;GIORDANA, Maria Teresa;PINESSI, Lorenzo;RUBINO, Elisa;
2015

Abstract

In the prospect of improved disease management and future clinical trials in Frontotemporal Dementia, it is desirable to share common diagnostic procedures. To this aim, the Italian FTD Network, under the aegis of the Italian Neurological Society for Dementia, has been established. Currently, 85 Italian Centers involved in dementia care are part of the network. Each Center completed a questionnaire on the local clinical procedures, focused on (1) clinical assessment, (2) use of neuroimaging and genetics; (3) support for patients and caregivers; (4) an opinion about the prevalence of FTD. The analyses of the results documented a comprehensive clinical and instrumental approach to FTD patients and their caregivers in Italy, with about 1,000 newly diagnosed cases per year and 2,500 patients currently followed by the participating Centers. In analogy to other European FTD consortia, future aims will be devoted to collect data on epidemiology of FTD and its subtypes and to provide harmonization of procedures among Centers.
NEUROLOGICAL SCIENCES
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Borroni B; Turrone R; Galimberti D; Nacmias B; Alberici A; Benussi A; Caffarra P; Caltagirone C; Cappa SF; Frisoni GB; Ghidoni R; Marra C; Padovani A; Rainero I; Scarpini E; Silani V; Sorbi S; Tagliavini F; Tremolizzo L; Bruni AC; The FTD Group-SINDEM including Agosta F; Alberoni M; Appollonio I; Arighi A; Avanzi S; Baglio F; Benussi L; Bianchetti A; Binetti G; Bonanni L; Bottacchi E; Bruno G; Canevelli M; Canu E; Cerami C; Chiari A; Conti MZ; Costa A; Costa M; Cotelli M; Cotelli MS; Cupidi C; Daniele A; D’Anna S; De Caro MF; De Togni L; Dell’Osa MT; Di Stefano F; Ferrarese C; Ferrari C; Filastro F; Floris G; Franceschi M; Gennuso M; Ghidoni E; Giordana M; Gragnaniello D; Grimaldi L; Lanari A; Le Pira F; Lombardi G; Lorusso S; Ludovico L; Luzzi S; Magnani G; Manfredi LG; Marano P; Marcone A; Marrosu MG; Martorana A; Mascia MG; Masullo C; Mauri M; Mazzone A; Mela A; Merlo P; Micheli A; Milia A; Mina C; Montella P; Mura G; Murru MR; Nemni R; Paci C; Pantieri R; Panza F; Parnetti L; Perini M; Pettenati C; Piccininni M; Piccoli T; Pilia G; Pinessi L; Piras MR; Realmuto S; Ricca I; Rizzetti MC; Rozzini L; Rubino E; Sambati L; Seripa D; Siano P; Sinforiani E; Sorrentino G; Specchio LM; Stracciari A; Susani E; Talarico G; Tartaglione B; Tessitore Thomas A; Tiezzi A; Tiraboschi; Tognoni Tondelli M; Trebbastoni A; Turla M; Ursini Valluzzi; Vista M; Zannino G; Zanusso G
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Utilizza questo identificativo per citare o creare un link a questo documento: http://hdl.handle.net/2318/152273
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