The authors evaluated the caregiver time for 70 patients with ALS. The mean number of caregivers per patient was 2.0 (SD 1.3). Caregiver time increased with worsening of disability (p = 0.0001). The most time-consuming duties were housekeeping, feeding, and toileting. With worsening of patients' disability, families relied increasingly on paid caregivers. Caregiver time is a hidden cost of ALS care and is a major burden for caregivers.

Caregiver time use in ALS

CHIO', Adriano;CALVO, Andrea;GHIGLIONE, paolo;CAVALLO, Enrico;MUTANI, Roberto
2006

Abstract

The authors evaluated the caregiver time for 70 patients with ALS. The mean number of caregivers per patient was 2.0 (SD 1.3). Caregiver time increased with worsening of disability (p = 0.0001). The most time-consuming duties were housekeeping, feeding, and toileting. With worsening of patients' disability, families relied increasingly on paid caregivers. Caregiver time is a hidden cost of ALS care and is a major burden for caregivers.
NEUROLOGY
67
902
904
Amyotrophic lateral sclerosis; caregiver; time use
A. CHIO'; A. GAUTHIER; A. VIGNOLA; A. CALVO; P. GHIGLIONE; E. CAVALLO; A.A. TERRENI; R. MUTANI
File in questo prodotto:
File Dimensione Formato  
Neurology 2006 - Chio - caregiver time use in ALS.pdf

non disponibili

Tipo di file: POSTPRINT (VERSIONE FINALE DELL’AUTORE)
Dimensione 413.71 kB
Formato Adobe PDF
413.71 kB Adobe PDF   Visualizza/Apri   Richiedi una copia

I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.

Utilizza questo identificativo per citare o creare un link a questo documento: http://hdl.handle.net/2318/42115
Citazioni
  • ???jsp.display-item.citation.pmc??? 10
  • Scopus 57
  • ???jsp.display-item.citation.isi??? 49
social impact